Dear long-term survivors,
dear interested readers,
welcome to our website. Here we inform you about the clinical study “Carolin meets HANNA”.
OVARIAN, FALLOPIAN TUBE AND PERITONEAL CANCER IN GERMANY
Every year, around 8,000 women contract ovarian, fallopian tube or peritoneal cancer – in Germany. These diseases are among the most complicated and prognostically unfavorable clinical pictures (oder disease pattern) in medicine. Fortunately, in daily clinical practice we increasingly meet women with ovarian, fallopian tube or peritoneal cancer who have been disease-free for more than five years. In addition, medical research focuses on patients who have experienced a recurrence of the cancer and also have a medical history of at least five years.
By today there is only a small amount of scientific data on this important topic of long-term survivors.
The study “Carolin meets HANNA” led by the “Nord-Ostdeutsche Gesellschaft für Gynäkologische Onkologie (NOGGO e.V.) would like to change that state and evaluates long-term survivors with ovarial cancer. The dyadic study tends to indentify specific factors, which are characteristic for this unusual group of patients.
PARTICIPATE AND GET A PERSONAL FEEDBACK
Are you a long-term survivor * with ovarian cancer and interested in paricipating in our study?
* First diagnosis of ovarian, oviduct or peritoneal cancer more than 5 years ago
If you participate you will get a feedback on nutrition, physical activity and resilience (ability to manage crises). With your participation you will enable that other patients can benefit from new scientific findings.
For information on how to complete the study and how to participate in it, see “Study progress”.
TO THE STUDY “CAROLIN MEETS HANNA”
In addition to biological and immunological factors, our study also examines patients’ quality of life and resilience, as well as the lifestyle of long-term survivors in terms of diet, physical activity and sleep. Basic data such as age at first diagnosis, received therapies, comorbidities, comedications, social network, education etc. are collected.
The study was named after the patroness of the project Carolin Masur, who lives for more than ten years after the diagnosis of ovarian cancer relapse-free on the one hand. She gets involved in many projects for example the Ovarian Cancer Foundation. On the other hand it was named after sister Hanna, a Catholic nun and extraordinary woman who has lived with ovarian cancer for more than eight years. She has received chemo-therapy 155 times and even a few weeks before her death, she played an active role in social projects with children and juveniles.
This project was developed by the North-East German Society for Gynecological Oncology and the European Center of Excellence for Ovarian Cancer of the Charité – Universitätsmedizin Berlin . This project is supported by the German Foundation for Ovarian Cancer , the DIWA network, and is carried out worldwide as part of the international study groups GCIG and ENGOT .
Do not hesitate to contact us if you have any questions. By e-mail to firstname.lastname@example.org or via our contact form on this website. We are happy to explain our study in a personal conversation in detail.
We look forward to your participation.
Your study team “Carolin meets HANNA”
Prof. Dr. med. Jalid Sehouli, Dr. Hannah Woopen, MSc and Prof. Dr. med. Elena Ioana Braicu
an der Studie